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Explore Our Research / Assessments / Retinitis Pigmentosa

Retinitis Pigmentosa

An assessment of sonpiretigene isteparvovec

Public Meeting
April 2025

Assessment Status

Ongoing

Public Comments

Closed

Upcoming Milestone

Evidence ReportView

  • Overview
  • Full Timeline & Materials
  • Related Assessments & Articles

Interventions of Interest

  • sonpiretigene isteparvovec (Nanoscope Therapeutics)

For questions please contact info@icer.org.

View the Key Stakeholder List.

Main Review
April 11, 2025

New England CEPAC

The New England CEPAC’s 2025 public meeting on sonpiretigene isteparvovec

 

Register for Meeting
Retinitis Pigmentosa Meeting Agenda

Related Assessments & Policy Papers.

Woman_in_passing

Retinal Disease

 Jan 2018
09/17/2024

Draft Scoping Document

Download PDF

09/17/2024 - 10/07/2024

Public Comments on Draft Scoping Document

Download PDF

10/16/2024

Revised Scoping Document

Download PDF

10/23/2024

Research Protocol

Please find the research protocol here:
https://osf.io/uqjng

12/11/2024

Model Analysis Plan

Please find the model analysis plan here:

https://osf.io/6md5x

02/06/2025

Draft Evidence Report

Having trouble viewing the report? Click here. 

 

Download PDF

Draft Voting Questions

02/06/2025 - 03/06/2025

Public Comments on Draft Evidence Report

Download PDF

Submit a Public Comment

03/26/2025

Evidence Report

Download PDF

Revised Voting Questions

Response to Public Comments

04/11/2025

Evidence Presentation

05/15/2025

Final Evidence Report and Meeting Summary

Related Assessments & Policy Papers

Retinal Disease

 Jan 2018

Related Press Releases

Institute for Clinical and Economic Review Publishes Evidence Report on Treatment for Retinitis Pigmentosa

There are significant uncertainties regarding long term efficacy and durability of sonpiretigene isteparvovec; ICER estimates that treatment would achieve common thresholds of cost-effectiveness if priced between $67,400 and $101,300.

Read More 03/26/2025

Institute for Clinical and Economic Review Releases Draft Evidence Report on Treatment for Advanced Retinitis Pigmentosa

Public comment period now open until March 6, 2025; Requests to make oral comment during public meeting also being accepted.

Read More 02/06/2025

Institute for Clinical and Economic Review to Assess Treatment for Retinitis Pigmentosa

Report will be subject of New England CEPAC meeting in April 2025; Draft Scoping Document open to public comment until October 7, 2024.

Read More 09/17/2024
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